My living hell: Crohn’s Disease nearly killed me

2 Jun

BY DAISY BECKMAN age 13

(Donna Gee’s granddaughter)

The last nine months have been living hell for me. My Crohn’s has been horrific and I’ve been in and out of hospital many times. It all started when I went to Manchester Children’s Hospital and I was on 32 tablets a day and was rattling with drugs. I was doubled over in agony most of the time and was in desperate need of an operation to remove my extremely inflamed bowel. They did many scans and tests and found nothing. I had a nasal gastric tube placed which I hated and was fed through that and was not allowed to eat because I was vomiting when I did. My consultant did not think I required an operation and suggested most of my pain was psychological. This made me mad and upset me more than ever to think me being in pain most if not all of the time was being completely ignored. I went to Alder Hey children’s hospital which was very on the ball and my new consultant Dr Auth was fantastic and got all my MRI scans, bariums and scopes done straight away . When I woke up from an anaesthetic I was told I required an operation to remove some bowels and that it would be pretty straight forward. My operation was planned for two months time – not long after my 13th birthday. I went to my outpatient’s appointment in a wheelchair as I was in that much pain and so weak that I could hardly walk. Dr Auth said I had to be admitted straight away so I went to ward E3 for the night. The next morning I was wheeled down to ultrasound and they found the unexpected. I had no clue what was going on but my surgeon was called to ultrasound and was very concerned. Then I was told in two hours time I would be operated on. I was panicking like mad so my nurse gave me some premed before theatre to calm me down and I was all drugged up and completely out of it . I don’t remember anything after that . I had had the biggest operation of my life lasting seven hours. I had an abscess stuck near my kidney which nearly killed me and a stricture. I had lost loads of blood during the operation and needed a blood transfusion. I have had such a traumatic time and I just wanted to thank you all so much for doing this Walk for me it really does mean a lot. I wish I could be there to thank you all personally but I am so far behind with my studies that I really have no time for anything but schoolwork at present. You are all wonderful for supporting research which will hopefully make the sort of pain I have suffered a thing of the past. Your donations really do make a difference.To end I want to say a huge thank you to my grandma Donna for doing a sponsored slim to help CICRA and for making people more aware of the pain and suffering of children with Crohn’s through her column in The Courier newspaper in Spain.

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